I hate to even write this post because I don’t want to jinx anything, but we are 1 year seizure free! I remember before we went into surgery that I wanted so bad to be able to post 1 month seizure free. I was incapable of looking this far ahead. But we made it, and we are here. Little man has not had a seizure in 1 year and he has had 2 normal EEGs in the meantime. Yesterday was the 1 year anniversary of his surgery. It is hard to look back. This year has been difficult to say the least, but he has come so far. We are going to celebrate today by taking him to his first movie in the theater. I am not sure how he will like it, but we are going to give it a try!
On his developmental front, his language continues to improve. He is using about 5-10 words now to communicate with us! He has probably said over 100. The biggest improvement in the last few weeks has been his “echoics”. This is an ABA term that means his ability to imitate what we say. He is imitating our sounds and words now which is a huge step for him in learning language. He will start going 4 days a week to ABA therapy next month, which we are really excited about. Here is a video with him imitating me saying “A-choo”.
Here are some more recent pics from the past couple of months. Thank you again for all your thoughts and prayers. We are so very thankful that Eli is doing so well and that he is such a happy, sweet little kid.
He actually participated in Easter Egg hunts this year!
He had a great time at the Georgia Aquarium. He was really interested in all the fish. It was great to see!
Love this little man!